The National Ankylosing Spondylitis Society (NASS) is the only registered charity dedicated to the needs of people affected by ankylosing spondylitis in the UK. It was formed by a group of patients, doctors and physiotherapists in 1976.
Ankylosing spondylitis (AS) is a painful, progressive form of inflammatory arthritis. It mainly affects the spine but can also include other joints, tendons and ligaments, and it tends to affect men, women and children in slightly different ways. The condition causes the joints and bones of the spine to fuse together, often starting with the pelvis.
Typical symptoms of AS include slow onset of back pain and stiffness over weeks or months, feeling better after exercise and worse after rest, weight loss, fatigue and feeling feverish at night.
AS is part of the Spondyloarthritis family, which includes three other conditions; entreopathic arthritis, psoriatic arthritis and reactive arthritis or Reiter’s syndrome. Details of these can be found on the NASS website.
NASS helps people gain a greater understanding of the disease and in turn manage their symptoms better. The charity produces a variety of resources including patient guides, fact sheets, podcasts and exercise DVDs. It also provides regular supervised hydrotherapy and physiotherapy sessions through a network of volunteer branches throughout the UK, publishes updates on the latest treatments and encourages participation in research.
As well as this, NASS has some helpful advice on coping with AS on a day to day basis; from getting a diagnosis and the facts you’ll want to know when first diagnosed to managing and living with AS. It offers tips on exercise, stress and how writing a list of what helps during the difficult times.
- To seek a cure for ankylosing spondylitis and related conditions, and improve their treatment in the UK
- To promote awareness of these conditions in the UK
- To provide guidance, advice and information for people affected by these conditions including their families, their carers and their employers.
National Ankylosing Spondylitis Society
Unit 0.2, One Victoria Villas
020 8948 9117
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